Tuesday, December 16, 2014

The fight for the RIGHT Diagnosis

Today Annalise had her full 4 hour testing for Autism. Now they are saying that she is NOT autistic. That's not how it sounded a month ago. I was warned that this would happen.

While Annalise shows the behavior side of Autism, she does not display the social communications deficit. So in other words they are saying she is NOT on the spectrum.  That's great right? But why do I feel that sense of dread that because she is so social thanks to my training that this could come back to haunt us down the road. They only spend a short time with her I spend all day with her and I see a lot more than anyone else. I'm worried that she is on the cusp of the spectrum and it could hurt her in school because of not getting the proper diagnosis NOW. I also feel like the stuff that screams autism is being downplayed because of her being a love bug. Every child is different.

They did say that she has a sensory processing disorder but won't put it on paper in those words due to insurance companies do NOT recognize it. SERIOUSLY?

They did give her a diagnosis of feeding disorder and delayed milestones. So they have suggested therapy and OT for Anna. We are still waiting for an OT since the last visit. They kept saying she has a rigid temperament. Well NO kidding.

This was just their summary today and I was told that they would email me their full findings. They also said that if the therapies do not work we would talk meds. Uh hold up why does she need meds? She's not add or adhd.

I am going to ask the pediatrician next month if he can get us a second opinion if necessary. They didn't even test her for 4 hours like I was told so. So we shall see.

I guess my biggest thing is  All of her behavior POINTS to autism, techniques and therapies for kids with autism work wonderfully for her, then HOW is she not mildly or should I say HIGHLY functioning autistic? All because she is social and smart? I'm sorry but I don't buy that.